Neuro Research Foundation

THE NEUROSENSORY & NEUROREGENERATIVE RESEARCH FOUNDATION

The Neurosensory & Neuroregenerative Research Foundation (NNRF) is a group dedicated to unravel the neurological underpinnings behind two relatively unknown, under recognized yet highly prevalent neurological conditions; Visual Snow  (VS) and Hallucinogen Persistent Perception Disorder (HPPD). The basis behind the desire to conduct research on VS and HPPD is due to their similarities in symptom complex. With the proper resources placed in research, funding and advocacy the NNRF will certainly make an impact in this desperately deserving patient pool in need of help and relief.

A major factor in the lack of quantified cases of VS and HPPD is lack of proper Physician training and awareness.  The fact of the matter is that physicians by and large are completely unaware of and in managing an individual who has contracted VS or HPPD. The result of this unfamiliarity to these conditions typically yield misdiagnosis and with that the prescription of medications which do considerable more harm than good, oftentimes leading to worsening of symptoms if not tragic outcomes.  Below is an excerpt from 60 minutes “Why doctors often write off visual snow patients.”

In an effort to improve expectations at the physicians office for both patient and practitioner, advocacy campaigns would be tailored primarily to emergency room personnel, psychiatrists and psychologists who are typically the first to encounter individuals that suffer from neurosensory dysfunction. Through advocacy and awareness countless lives can be saved. Through proper treatment by physicians who are empowered with the knowledge in identifying the telltale signs of VS and HPPD quality of life can be preserved and through research can a cure be found.


Update As of 11/24/2015

Letters have been sent to the US Dept of Education, the National Educators Association, National School Psychologist Association and the National School Nurse Association with the intent on working on a national campaign to educate faculty, parents and students of the dangers posed by HPPD. We intend to produce a webinar sponsored and endorsed by these agencies which will create awareness of this neurologically acquired disorder to the point where the NIH will see the need and validity to allocate funding for basic research.


Foundation Website